Local Student in Need of Bone Marrow Transplant – See if You’re a Match 3:30-5:30 Today

“Dear PoPville,

My son attends Creative Minds International DCPCS. This school is amazing and is full of equally awesome students and teachers. Unfortunately, one of the superkids, a little boy, is very sick. He is in desperate need of a bone marrow transplant.

From 3:30-5:30 TODAY at Creative minds (Corner of 16th St. and Park Rd., across from Sacred Heart Church, the building that has the half circle driveway and looks like Hogwarts a little) the non-profit Be The Change will be holding a swabbing event in hopes of finding a marrow match for this sweet little guy.

Be The_Match (PDF)

20 Comment

  • Do it!

    Seriously takes seconds. I’m already on the registry….I wish I was the match for him, but obviously not since they haven’t contacted me. Great organization….and, I recommend taking advantage of a swab event like this—free, quick, easy (I believe, when I swabbed years ago, if I hadn’t done it through an event, I would have had to pay??? I could be mistaken/fuzzy memory).

    Either which way, painless way to maybe save a life…this kid’s or another.

    • I think this is wonderful and I’m not at all trying to detract anyone from doing it, but… while the swabbing may be painless, the transplant process is actually somewhat painful and takes some recovery time, right? So you could get swabbed easily, but to actually save someone’s life, you should anticipate a day of surgery and a week or more of recovery.

      • I have a friend who donated through Be the Match via apheresis a short while ago. He basically spent a day simultaneously giving/getting a blood transfusion (instead of the typical bone marrow donation). I’m not sure when one method is recommended over another another, but I think the transfusion method has less downtime and possibly fewer risks because it isn’t surgical.


      • It used to be that the only (or at least primary) way of donating bone marrow was through a fairly painful process that involved a big needle and your hip. Now it’s mostly done by donating blood plasma, which is a much easier process that, like the other responder said, is more akin to donating blood. Regardless, signing up does not obligate you to donate should you be a match — you can learn more about the process before making a final decision.

        • Right, I’m not detracting from it or saying people shouldn’t sign up, it’s just that they’re entire campaign feels misleading to me (“A few seconds for a swab and you can save a life!”). They’re just relying on the fact that once someone is told they are a match, whether they want to go through the donation process or not it will be too difficult to say no. Which, maybe that’s effective, but, I don’t know. I think people should understand what they’re getting into.

          I think it’s great there’s a new method, I hadn’t heard of that. It’s a big incentive, actually, so thanks for sharing.

      • Even if you are an initial match, in my experience, it is unlikely that you will be asked to donate bone marrow. I have been on the registry since 2001 and have been contacted twice. The second step was a series of medical history/lifestyle questions and blood work to establish how close of match you are to to the recipient. Both times I was not chosen to donate anything because someone else was a better match. About 10 of my friends registered at the same time and none of them have been contacted.

    • Sevin,

      Thank you so much. Although you may not be the match this time, you could be the match for someone else. As a mom of a son at Creative Minds I thank you from the bottom of my heart and I thank you on behalf of the school, the family of this sweet little pumpkin, and of course for the pumpkin himself. There should be more people like you in the world. “Spread the love man!”

  • I registered for be the match about 10 years ago and never got a call….made me nervous that they don’t have my info, but I still get emails from them so know its still current. Right?

    I suppose its pretty hard to find a match based on that limited experience, so I def recommend getting swabbed. Who cares about the pain you experience – you potentially save a life, and would want others to do the same for you..

  • Perfect for me, I had the kit, never sent it in. I can drop by today and it is DONE!!! Thanks POP!!

  • I would like to do this, but I’m at work all day. Anyone know of other places/times to get swabbed, either for this particular kid, or for a larger registry?

    • burritosinstereo


      Be the Match is the country’s biggest bone marrow registry. If you sign up, they send you a swab kit that you do at home, and is pretty much idiot proof. You swab the inside of your cheek a few times, send it back, and they contact you if you are ever a match. I’m white, so I’ve never gotten contacted and I’ve been on the registry for about 5 years, but there is a huge demand for minorities, especially Asian donors. I’m not sure how to explain it scientifically, but for whatever reason, if you are Asian there is a much higher chance you’ll be matched with someone.

      • Just checked out the site — and if you’re between 45 and 60, you have to register online and donate $100. That’s pretty discouraging and likely means that someone over 45 would only donate if there was a particular person that they wanted to match. I hope that’s not the case for today’s event. Similarly, if there’s a demand for donations from non-white populations, charging and restricting older donors (although I understand the reasoning) seems problematic if the goal is to increase the pool of non-white donors.

  • I wish they would keep this open later – there’s just no way I could get there before 530, and I’m sure that applies to many others as well.

  • “Men who have had sex with other men within the past 5 years are currently not eligible to register as a potential volunteer donor. This is because men who have sex with men are, as a group, at increased risk for HIV.”

    Um… am I the only one who has a serious problem with this policy?

    • epric002

      it’s the same policy as for donating blood, right? i don’t agree with it either way. where did you find that info? i’m not eligible to donate blood b/c i lived in europe in the ’80s so i guess i can’t do this either?? also agree that the timing of the drive is problematic for people who work 9-5s.

    • lovefifteen

      The policy is disgusting and hateful. I am a gay guy who does not have HIV, and I cannot donate even though I have Rh-negative blood, which is always in shorter supply. Less than 15% of people have Rh-negative blood, and people with RH-negative blood can only receive other Rh-negative blood. Why on earth is an HIV test good enough for “heterosexual” blood, but not for the blood of gay men?

      • It is a really rotten policy. But it’s not a Be the Match policy. The FDA makes the rule, and they’re the ones to lobby about it. The Red Cross, American Association of Blood Banks, American Medical Association, and lots of others have been trying to get them to change the rule for over a decade. Apparently changing the rules could lead to one more case of transfusion-caused HIV every 32 years. When you think of how many people die for lack of a bone marrow donor each year, it seems like a very tiny risk in comparison.

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